Pardon the pun. It’s my coping mechanism currently.
I went for the high resolution ultrasound today, fully expecting them to find the bright bowel was a mere blip from old, crappy machinery.
No such luck.
Bright bowel is still there, and after an incredibly thorough ultrasound, the perninatologist went over the results with me. He said the brightness was visible through the whole bowel, though still sounded confident that it was very likely nothing. He went over my options, and sent me for blood work to be tested for infections and cystic fibrosis. If my CF test comes back negative, that’s the end of that story. If I come back as a carrier of a CF strand, J will then need a blood test to see if he’s a carrier, too. I guess it’s only if both parents are carriers of a CF strand that there’s a chance the baby will be born with it. The doctor says the chances are like 1% of cases–he’s only seen one birth with echogenic bowel that resulted in cystic fibrosis. He said the chances of infection are really low, as well, as he saw no other symptoms of infection in the ultrasound.
So that brings us to the big one: Downs Syndrome. As I mentioned yesterday, echogenic bowel is a soft marker for DS. The doctor talked about the options that were open to us if we wanted to continue testing (amnio), though said this is really only a recommendation when the chances are greater than a 1 in 200 chance (greater than? less than? I hope you know what I mean). We’re just above that. As a result of our blood work and our NT scan, Baby B had about a 1 in 1600 chance of having DS. Echogenic bowel increases your odds 6 fold, so we’re sitting at about a 1 in 250 chance (the doctor did the math–I trust his more than my own). He said the risks connected to the amnio are nearly on par with the actual chances of finding Downs, and frankly, I’m not prepared to do an amnio at this point. And really…what are we going to do about it at this point?
The doctor kept repeating that he saw no other markers for Downs, and that both babies are growing really well. That was comforting.
Then came the news about Baby B’s kidney situation. Neither him nor his ultrasound tech could find Baby B’s left kidney, leading them to believe that this kid will likely be born with 1 kidney only. Not the end of the world, he explained, but I felt like a frigging truck hit me over.
There is still a chance that they’ll find the kidney at another scan, but they couldn’t see anything this time, nor could they see any blood vessels going to it. Again, the doctor didn’t seem concerned and said there are no real health issues related to people born with 1 kidney. It’s very common, blah blah blah.
All I could think about, though, was SERIOUSLY? Haven’t we been through enough? It’s like this whole stupid roller coaster never ends. As soon as I start to feel comfortable and settle into this pregnancy, I’m bowling-balled with shitty news. I’m feeling pretty sorry for myself today, and am just hoping against hope that we go for a future ultrasound and everything is magically okay. I appreciate the fact that the doctor was so positive about everything, but I just want two perfectly healthy babies. A lot to ask, I guess.
Ugh. This parenthood thing is hard, and these babies aren’t even born yet.
-Wishing things were easier Family Van.